About Me

About Me? It is hard to define ME in a few paragraphs. Maybe the greater difficulty is deciding on what ME I want to share on this site or what ME I want to become.    So the basics. I am a wife. A mother of two daughters, the eldest with Rett Syndrome.  I am the eldest sister of three. A friend. A former work colleague and a Runner.

I am blessed with so many wonderful things in my life, especially friends and family.  In some ways my life feels quite rich but on a day-to-day basis there are a lot of struggles trying to make it all work, especially because of the special needs factor.  I have always been on the search for greater happiness, trying to figure out what I should be doing and finding that ideal alignment that is authentic to who I am. I am embarrassed to relay how many self-help books I have read so far in my life and there is no question that they have helped me to some degree but I finished each one with an even greater thirst for more answers instead of feeling satiated or satisfied that I was on the right path. Only recently do I feel that I have tapped into a new line. It is fresh and deep and one that I know is going to open a whole new world for me and my immediate loved ones. It is exciting, terrifying but also exhilarating. I don’t expect this journey to have a defined start and end but I am quite confident that in 1, 5 and 10 years from now I will be able to reflect back on the last few months and say with certainty that this is when my new way of living started.

In the mean-time I do feel a little scattered. It is almost like I have just opened a new puzzle and have scattered all the pieces out on the table. I know what the end result is going to look like (feel like) for I have that puzzle picture in front of me and now I just need to put all the pieces together. In some ways I am starting with the border right now, although my border has some fluidity to it as opposed to being fixed and rigid.  It might take me a life time to put all the pieces together but for every connection I make will make me stronger.

So my objective with this blog is multi-fold…to discover who I am. Not who I should be or ought to be but who I am so I could work with my strengths and interests more effectively and ultimately be a better wife, mother, daughter, sister, friend and employee.   With that I dedicate this  memoir to both my daughters. One daughter who can melt away all life’s sorrows with one flash of her smile or sound of her laughter and another daughter who been blessed with so many talents that truly does have the potential to  become whatever her heart desires.


2 thoughts on “About Me

  1. My daughter has a newly discovered syndrome that is in the same family as Rett’s. Years and years before we adopted our daughter a high school friend had twin daughters with Rett’s so we are familiar with the syndrome and have supported her family for many years. Glad I found your blog.

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